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Giving Up Custody to Save Your Child

Monday, 24 July 2017 11:58

 

ParentsCan you imagine being left with no choice but to surrender custody of your own child in order to get him help?  Consider a hypothetical family of four: mom, dad, one typical child, and one child with extreme and violent behaviors, all living together under one roof.  They’ve tried everything: school-based interventions, private therapy, brief periods of hospitalization, medication.  Still, the behaviors persist.  They can’t get a waiver and they can’t afford a private boarding facility.  So they lock their bedroom doors at night, or even send the typical child to live with other family members to ensure her safety.  They are scared.  They’ve been physically injured.  The police know them and have had to intervene many times.  While this is a pure hypothetical, situations like this do happen. 

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Avoiding Guardianship Fights Over Your Adult Child with Disabilities

Friday, 02 June 2017 11:22

Guardianship Article PhotoLike many older parents of adult children with disabilities, you are probably concerned about what will happen to your child after you are gone. You may have also done extensive planning to make sure your child’s needs are met. You are comfortable that there is a good team in place when needed. So can you rest easily? Unfortunately, not always.

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What's Happening to Services in the DD System?

Friday, 09 December 2016 10:57

Couple 2016The past three years have seen developments which are leading to sweeping, radical changes to the system of services for persons with developmental disabilities (DD). Many families have become confused and anxious about these changes. While we cannot remove anxiety about how the system will evolve over the next few years, we can offer some clarity about why the changes are happening.

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The Importance of Intensive Therapy and the Research Behind It

Friday, 13 May 2016 09:54

UCP-Cleveland-D1-68Twenty years ago, strength training in children with cerebral palsy was discouraged, as it was assumed that it would increase spasticity (tight/stiff muscles and the inability to control them). However, this was not supported by the results of earlier studies, which showed that strength training can actually improve lower-limb muscle strength in children with CP, without increasing spasticity.  Current research supports that intermittent bursts of intensive therapy during development is beneficial to children for them to learn and re-learn movements.

Research shows that time and duration of these bursts can vary and be effective from as little as 45 minutes per session up to three hours per session, and can range from two weeks to 16 weeks. Shorter sessions do not allow for body preparation prior to active functional strength and neuromuscular re-education type activities. While typical, traditional therapies ranging from 45-60 minutes, one to two days per week address these issues, an intensive program has shown to build on current skills and takes clients to another level of function toward independence.

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